Despite increasing awareness around autism, there is still an opportunity to build greater understanding of how organisations can create genuinely inclusive environments. This blog provides possible ways to support autistic colleagues, particularly for managers, from my perspective as an autistic pharmacist.
Creating a supportive environment
A crucial part of a manager’s role is to help create an environment where all colleagues feel respected. This includes developing and ensuring you have a basic understanding of autism and reasonable adjustments, whether for your current team, future colleagues or patients.
Autistic individuals may have a diagnosis, be waiting for a diagnosis or have a self-diagnosis, and have varying support needs. They are all valued members of the autistic community and are all entitled to reasonable adjustments.
It can be helpful to reflect on any preconceived ideas you may have around autism, as these are often formed from inaccurate stereotypes or common misconceptions.
Reflecting on this can help you to approach the topic with more openness and recognise the benefits of implementing systemic changes by putting inclusive practices in place.
Your autistic colleagues shouldn’t feel they have to constantly advocate for themselves due to a lack of inclusivity.
Practical ways to support autistic colleagues
Use reliable resources when learning about autism, some of which are listed below. This also applies to reasonable adjustments;
It is their decision whether they tell you that they’re autistic, including if they decide to share this with other colleagues and how they may want to do so. Make sure to provide a safe space for them to open up if they wish. It’s also important to remember that they don’t owe anyone an explanation on autism or their story;
Ensure colleagues are aware reasonable adjustments are available to them. This can help reduce any stress on them trying to initiate that conversation;
It is essential to give them the space to tell you what support they need, rather than trying to make that decision for them. Reasonable adjustments may also change over time, for example requiring more support during busier periods;
Use the correct and respectful terminology, for example using the term “low support needs” instead of “high-functioning”;
Never make assumptions on their strengths and areas for support;
Try to focus on understanding and supporting your autistic colleague, rather than feeling you need to understand the entirety of autism.
Even if you are just starting to learn about autism, ensuring that you are respectful, accepting and providing the support autistic people may need is what matters most. It is a necessity for work environments to be genuinely inclusive for everyone.
Pharmacy’s role in reducing health inequalities for people with a learning disability and autism
This was published when the organisation was the Royal Pharmaceutical Society
Listening and learning from people’s experiences
At NHS England, people with lived experience of learning disability and autism work in co-production with healthcare professionals, including pharmacists. Learning from people’s personal experiences adds unique quality to our work.
We are passionate about STOMP (Stopping the over medication of people with a learning disability and autism of all ages) and STAMP (Start appropriate medication in Paediatrics). We all need to work together so that people are only prescribed the right medication, for the right length of time and for the right reasons.
We were both proud to present at the Action in Belonging, Culture and Diversity (ABCD) group. The group meets every two months with the aim of improving inclusivity across pharmacy services. Members talked about the benefits and impact of having a person with a learning disability present at the group.
What opportunities are there in your role to listen to and respond to the views and experiences of people with lived experience?
Aaron's personal experience of medication
I became mentally unwell and was diagnosed with anxiety and depression. The doctor gave me 50mg Sertraline and 30mg Propranolol, said I may experience side effects and would review my medication in a year’s time.
I had never taken any psychotropic medication before. I put on a lot of weight, had nightmares and became so unwell I was off work for four months.
I made another doctor's appointment and explained how unwell I was feeling. The doctor took me off Sertraline and prescribed me 30mg Citalopram. I started feeling like myself again.
There are things that the doctor should have done differently, but there are also things the pharmacy team could have done to help me understand and have the best experience of medication, including:
Using plain English when talking, giving me written information and checking I have understood it;
Asking me about other medication I am taking now or have taken in the past;
Offering information about the medication prescribed and how to take it;
Explaining any possible side effects, and what I should do if I experience any;
Asking if I have difficulties swallowing;
Explaining the best way to take the medication, for example, drink with water not fizzy drinks.
Resources to improve inclusivity of pharmacy services
Aaron’s experience is not unique. At NHS England, we often hear from people with a learning disability, autistic people and their families about the challenges they face when accessing health services.
It is clear from Aaron’s experience that there is more that all pharmacy teams can do to improve care for people with a learning disability. Teams in community pharmacy, within primary care networks and in hospitals have their part to play. This includes:
Understanding, recording and implementing reasonable adjustments to make access to pharmaceutical care more comfortable;
Being STOMP and STAMP aware to educate people about psychotropic medications. Learn more about STOMP awareness and access STOMP training;
Thinking about your communication style to ensure care is accessible and adjusted to the person. Find out more from the CPPE learning Disability Hub;
Being learning disability aware: CPPE;
Completing the Oliver McGowan Mandatory Training in learning disability and autism awareness.
Read more blogs.
Lifelong learning: empowering excellence and growth
At the Royal Pharmaceutical Society, education and professional development sit at the heart of our purpose. Investing time in active lifelong learning is more essential than ever.